tag:blogger.com,1999:blog-236574139482377597.comments2020-06-08T02:29:03.029-04:00Cancer Survivor Inspiration...Unknownnoreply@blogger.comBlogger32125tag:blogger.com,1999:blog-236574139482377597.post-56259819406516689512011-12-28T17:06:32.715-05:002011-12-28T17:06:32.715-05:00I love this and would like a post a linky to it on...I love this and would like a post a linky to it on my blogTammy Philipp Legerhttps://www.blogger.com/profile/05174404456256634640noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-456044505161089502009-09-07T19:18:30.506-04:002009-09-07T19:18:30.506-04:00Special invitation to leukemia bloggers. This mon...Special invitation to leukemia bloggers. This month’s Book Club selection at www.beingcancer.net is by leukemia and transplant survivor, Evan Handler. Handler is a noted Broadway and television actor best known as Charlotte’s boyfriend/husband in Sex and the City. He has also appeared in Lost, The West Wing, and Studio 60. This funny and poignant book covers his diagnosis with AML, his remission, relapse, and treatment with bone marrow transplant at John Hopkins and Memorial Sloan-Kettering. You can order a new or used copy of the book from my site. Discussion began today and will continue for the next three Mondays in September.<br />Take care, DennisDennis Pyritz, RNhttp://www.beingcancer.netnoreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-5758435314748503712009-09-01T22:34:00.220-04:002009-09-01T22:34:00.220-04:00Great Post! I am going to republish it tomorrow, ...Great Post! I am going to republish it tomorrow, Wednesday 2 September, as one of two posts by leukemia survivors as this week's featured Guest Posts at www.beingcancer.net. I will include two links to your site as well as a link to the original post. You may see a rise in traffic as this is a popular feature.<br />Take care, DennisDennis Pyritz, RNhttp://www.beingcancer.netnoreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-74208651884701089482009-08-27T14:47:13.149-04:002009-08-27T14:47:13.149-04:00Love the stories. Simple and clear and helpful.
A...Love the stories. Simple and clear and helpful.<br /><br />After I get a new marrow to stick around long enough for a cure, then I replace my knees. The bionic man.<br /><br />My recent bone marrow biopsy is still sore after a week, so my exercise schedule is off. I miss it.<br /><br />Be well<br /><br />BrianBrian Koffmanhttps://www.blogger.com/profile/13250684684103918493noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-28830417969898007712009-08-21T11:08:07.719-04:002009-08-21T11:08:07.719-04:00Mikha'el, I totally identify with the way you ...Mikha'el, I totally identify with the way you are feeling. I am in that place myself at the moment. But somewhere we shall find the strength to keep on doing what we're doing. I too have a blog, Soapy's CLL Journey<br />Holding hands and sending cyberhugs across the net. Soapy.Soapynoreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-69858170628230861892009-08-07T14:03:28.579-04:002009-08-07T14:03:28.579-04:00what a great poem - very inspirational- thanks for...what a great poem - very inspirational- thanks for posting and good luck on your healing journey from a fellow journeyer on the path http://beyondbreastcancer.wordpress.com/JBBChttp://beyondbreastcancer.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-38496329800598099032009-08-02T00:03:13.515-04:002009-08-02T00:03:13.515-04:00Great Blog! I have added you to my blogroll, “Can...Great Blog! I have added you to my blogroll, “Cancer Blog Links” with over 400 other cancer blogs at www.beingcancer.net, a cancer networking site featuring a cancer book club, guest blogs, cancer resources and more. Please stop by and visit. If you like the site, please consider adding Being Cancer to your blogroll.<br />Take care, DennisDennis Pyritz, RNhttp://www.beingcancer.netnoreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-83415044400909182292009-07-28T00:40:09.706-04:002009-07-28T00:40:09.706-04:00i am in remission from leukemia .i live every day ...i am in remission from leukemia .i live every day to fullest doing my own thing .keep smilingsallygriff/ariemahttps://www.blogger.com/profile/17586831776393515728noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-14917505143812117872009-06-03T17:07:52.861-04:002009-06-03T17:07:52.861-04:00Sometimes the daily chores themselves can take you...Sometimes the daily chores themselves can take you out of your worries. You know, the old mindfulness technique: When doing the dishes, focus just on doing the dishes. I always find that getting into a good book or taking a walk or being with my children helps too. Of course the kids are people too and when they are having a bad/grumpy day, they're not such a great distraction!Ronni Gordonhttps://www.blogger.com/profile/00036024135497392070noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-31089250376833578572009-05-02T18:14:00.000-04:002009-05-02T18:14:00.000-04:00I'm an 18+-yr survivor, in and out of rx (currentl...I'm an 18+-yr survivor, in and out of rx (currently in remission). I've heard many people say they want to live each day as if it were their last. But that approach never appealed to me and had many downsides.<br /><br />For one, as you focus on in your post, the daily activities, hassles, responsibilities don't disappear. To want to avoid - or to resent - the humdrum annoyances and inconveniences opens a path to unhappiness.<br /><br />Another consequence of living for today and only today is that I'd lose hope: hope for better tomorrows. The hope that rests of delayed gratifications, such as working on a project now that won't bring real pleasure until later (maybe much later). Such as saving money now for a future trip or purchase.<br /><br />For me, it has been living for today AND tomorrow. Trying to embrace all the little daily wonders, many that used to go unnoticed. Trying to brush off annoyances, but not beating down on myself if I do get annoyed. <br /><br />I wrote about moving on in a poem entitled View From Remission that can be found on my website (click inspiration, and then click on poems).<br /><br />With hope, Wendy<br />www.wendyharpham.comWendy S. Harpham, MDhttps://www.blogger.com/profile/09167276216970598762noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-86703390222555922682009-04-24T14:18:00.000-04:002009-04-24T14:18:00.000-04:00Hello from the CLL-PAG conference in Niagara Falls...Hello from the CLL-PAG conference in Niagara Falls.<br /><br />I think what we always keep control of is not the disease, but how we react to what the disease is doing.<br /><br />Is that enough for hope?<br /><br />I hope soBrian Koffmanhttps://www.blogger.com/profile/13250684684103918493noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-46934030307583291142009-03-26T13:46:00.000-04:002009-03-26T13:46:00.000-04:00Phooey, I meant to come here on Tuesday and wish y...Phooey, I meant to come here on Tuesday and wish you a Happy Birthday. Like everything else, I will blame it on Chemo Brain. So let me wish you a Happy Belated Birthday instead. Since you were attached to the IV Pole, you need to celebrate it all week anyway. I hope this finds you feeling well and may you have many, many more birthdays to come.John Wagnerhttps://www.blogger.com/profile/17473272053117617993noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-21315853219205405412009-03-24T13:43:00.000-04:002009-03-24T13:43:00.000-04:00Steadfast and also ever changing to meet the needs...Steadfast and also ever changing to meet the needs of the moment is the master of time and space.<BR/><BR/>G-d bless and many many more HAPPY BIRTHDAYS <BR/><BR/>I am in Dr Rai's waiting room sending this note.Brian Koffmanhttps://www.blogger.com/profile/13250684684103918493noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-69947258539632040602009-03-11T10:20:00.000-04:002009-03-11T10:20:00.000-04:00I was subject #15 in the Phase I trial of Rituxan ...I was subject #15 in the Phase I trial of Rituxan in 1993 at Stanford. Thank you for highlighting the hard work of researchers and nourishing the hope offered by science.<BR/><BR/>Like you, I've had a new appreciation of mice since the frightening days of my early cancer recurrences. I have a nice collection of mouse-themed decorations and earrings!<BR/><BR/>With hope, WendyWendy S. Harpham, MDhttps://www.blogger.com/profile/09167276216970598762noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-37908578280219112662009-03-05T13:05:00.000-05:002009-03-05T13:05:00.000-05:00The second dose of Rituxan is always almost easier...The second dose of Rituxan is always almost easier than the first, as is the second time sitting in that infusion chair.<BR/><BR/>"Vitamin R" should make you feel better, as I am sure you will move forward to a new place of greater well being.<BR/><BR/>Stay strong. Be well.<BR/><BR/>BrianBrian Koffmanhttps://www.blogger.com/profile/13250684684103918493noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-65339632928425002742009-03-02T23:16:00.000-05:002009-03-02T23:16:00.000-05:00I'm glad you found my blog entry helpful. Thanks ...I'm glad you found my blog entry helpful. Thanks for linking.<BR/><BR/>Carl Wilton<BR/>"A Pastor's Cancer Diary"<BR/>http://www.cewilton.blogspot.comCarlhttps://www.blogger.com/profile/00540884672406337833noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-61457376697719533232009-02-07T20:11:00.000-05:002009-02-07T20:11:00.000-05:00There is a big difference between wanting to embra...There is a big difference between wanting to embrace the moment in the face of uncertainty and actually doing so. <BR/><BR/>Believe me, I wanted to let go of my many fears -- of recurrence, unresponsive disease, side effects, late effects -- long before I could actually do it. <BR/><BR/>It was a skill not unlike many others: It benefits from good teachers, hope, will power and practice. Lots and lots of practice. <BR/><BR/>I can honestly say that now, after 18 years of being in and out of treatment for an indolent lymphoma, I rarely worry about tomorrow. <BR/><BR/>I don't like how I had to learn it, but I am grateful for the lesson. <BR/><BR/>With hope, Wendy<BR/>www.wendyharpham.typepad.comWendy S. Harpham, MDhttps://www.blogger.com/profile/09167276216970598762noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-59131392252398523212009-02-07T20:02:00.000-05:002009-02-07T20:02:00.000-05:00Hi,What physicians call "Wait and See" and patient...Hi,<BR/><BR/>What physicians call "Wait and See" and patients call "Wait and Worry," I like to call "Live and See."<BR/><BR/>Through the 18+ years of my survivorship with an indolent lymphoma, I've worked hard to learn how to live as well as possible in the face of uncertainty and when life is nothing like I planned for or hoped for or wanted or expected.<BR/><BR/>I'll look forward to reading your blog. With hope,<BR/>Wendy<BR/>www.wendyharpham.typepad.comWendy S. Harpham, MDhttps://www.blogger.com/profile/09167276216970598762noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-75508937996744378042009-02-05T16:58:00.000-05:002009-02-05T16:58:00.000-05:00Just had my quarterly blood draw done . .all is we...Just had my quarterly blood draw done . .all is well except for the WBC. <BR/><BR/>Why do I always feel there should be something I can do to MAKE them go down? Why do I always feel defeated . .like this is the # to watch?<BR/><BR/>You described it to a tee, or should I say tick:)?<BR/><BR/>By the way . . .I love your blog:)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-88796145390299407082009-02-04T13:33:00.000-05:002009-02-04T13:33:00.000-05:00Mikha'el,The bard said: Present mirth has present ...Mikha'el,<BR/><BR/>The bard said: Present mirth has present laughter.<BR/><BR/>No point in not enjoying the moment. Dr. Weiss from Sloan Kettering thought that watching WBC counts rise was of little help.<BR/><BR/>What matters is how you feel and if you are avoiding the minefields of anemia and low platelets. The rest doesn't count.<BR/><BR/>Be well<BR/><BR/>BrianBrian Koffmanhttps://www.blogger.com/profile/13250684684103918493noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-31906876797919684682009-02-04T09:17:00.000-05:002009-02-04T09:17:00.000-05:00I nodded through this whole post - the tick, tick,...I nodded through this whole post - the tick, tick, tick and the need to hone (or find) that 'live life today' muscle. (I find it an ongoing challenge, but a worthwhile one.) <BR/><BR/>Love your graphic here. Hope the tick, tick, tick launches you off toward some unexpectedly good places, places you might not have otherwise gone.CLL SPOUSEhttps://www.blogger.com/profile/13642642389275280617noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-13211441247827419622009-01-11T07:50:00.000-05:002009-01-11T07:50:00.000-05:00Hi Mikha'el, I love your post about Hope. Inspira...Hi Mikha'el, I love your post about Hope. Inspiration is a wonderful thing and the title of your blog is great. I have CLL too and wish you well with your journey. I will dip into your blog from time to time to see how you are doing. Cyberhugs, SoapyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-8276268875090632772008-12-28T15:22:00.000-05:002008-12-28T15:22:00.000-05:00I enjoyed this and am glad you waited for the righ...I enjoyed this and am glad you waited for the right song. I'd not heard it before and it fit beautifully.CLL SPOUSEhttps://www.blogger.com/profile/13642642389275280617noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-8063352039859194942008-12-27T12:48:00.000-05:002008-12-27T12:48:00.000-05:00Excellent. So true.Thank youExcellent. So true.<BR/>Thank youBrian Koffmanhttps://www.blogger.com/profile/13250684684103918493noreply@blogger.comtag:blogger.com,1999:blog-236574139482377597.post-30566340478917212372008-12-16T14:56:00.000-05:002008-12-16T14:56:00.000-05:00Well said. I love what you wrote here. Watching ot...Well said. I love what you wrote here. Watching others as if a fly on a wall, knowing at one time that was you out there enjoying things, and now you are removed from it, it seems so long ago. Thinking perhaps the cloudiness will dissipate, but then again maybe not. Knowing you need to find a way to live with it, stress on the word "LIVE."<BR/><BR/>I love everything you captured here. I don't love that you're having the experience of it, but your ability to capture it provides others will the chance to feel less alone.CLL SPOUSEhttps://www.blogger.com/profile/13642642389275280617noreply@blogger.com